We consulted with ENT today and Alex will be having his tonsils and adenoids out on Monday. They were able to give us even more specific results from his sleep study which showed that he stops breathing 21 times an hour. 21 TIMES each hour. My heart sank. They didn't even have to tell me that this is considered severe sleep apnea.
I am feeling quite emotional about having him undergo a surgery when we don't know for sure if it will "fix" his apnea but I've talked to all doctors involved and understand that there is no way they can determine how much is related to tonsils/adenoids and other structures versus possible tone issues. THey say his tonsils ARE enlarged but probably not enough by itself to make them want to take them out if it wasn't for the severe apnea. The ENT said they would be looking at his vocal cords, windpipe, etc while they are in there to ascertain if other factors more telling are involved. He said his sense is this surgery SHOULD make improvments in his apnea but obviously he can't guarantee it will "fix" it completley. I do understand that there are no guarantees for anything but I'm very sad about putting him through another surgery right now, especially because we still have his urology one in just a couple weeks (we have a call out to his surgeon for that but I'm told it should not affect his later surgery in any way).
He will be in the PICU (pediatric intensive care unit) over night, possibly a second day as well depending on how things go. They say they would keep any baby this size and with his issues of apnea in the PICU so for us not to be alarmed. I am asking for any one to please send good thoughts and wishes for Alex. I am praying that maybe the doctors are just being overly cautious but maybe this could in fact help his apnea a great deal. Maybe this will help him turn the corner and when he can get truly restorative sleep, he can feel better, stay healthier, grow easier, and continue to soar!!!