God is sooooo good to us! Alex is resting Very comfortably in a very familiar place: the nicu. Turns out the pediatric intensive care unit was full so Alex gets to go back to his old "home". We've already had plenty of our old friends (docs and nurses from before) come see us so it's very comforting. Alex came off of the ventilator without any issues and will be eating again tonight.
We are so thankful to all the thoughts and prayers, we feel them working!!!
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Tuesday (who the heck knows the date):
Alex did well overnight. We have encountered a little "bump" in the road as is life. He is not urinating and they have so far been unable to cathertize him due to his hypospadius. Unfortunately this happened a couple months ago as well after surgery when he was in the NICU and it did take a few days to get things going again. He is having a cat scan this morning for follow up of his shunt surgery, and now an ultrasound for his bladder and kidneys. I expect his urologist to see him as well and am trying not to go a million steps ahead of myself but ofcourse always the worrier and the planner (and no they don't make a good pair) but am thinking of the NICU nurses and Fellow can't figure out how to cath him, how the heck am I going to figure it out when its time. Obviously its too soon to know if this is going to be an issue that we have to deal with when brinigng him home, but due to the spina bifida, we always knew it was likely this was coming. We just hoped at least that it would be after his corrective surgery in the spring/summer when it will be easier. Again, 10 steps ahead as always.
We are soooo thankful he's in the best of hands with our friends at the NICU, but it sure does bring back alot of memories sitting with him there again.....
Thanks again for all the prayers. I have better technology this admission than previous times so I will be able to give updates from the hospital on my phone as news comes for anyone interested.
Alex had a good day overall. I was shocked and worried when I first saw him this morning, his belly was HUGE and he still was not peeing. They had done the ultrasound but everyone was waiting for results before doing anything even though to me, it was clear what needed to be done to help matters. Long story short we were able to get several people from urology and after many more attempts, they were finally able to get in a catheter. Deep breath finally by mom. Alex as always was a champ, and kept enjoying his sugar water and pacifier and didn't seem half as bothered as his mommy by all the prodding, (which ofcourse brings me more concern but we won't go there right now).
Good news is the catheter is in and doing its job and hopefully very soon can be taken out to see if he can go back to doing this for himself. The unofficial report back from the ultrasound is that the bladder was indeed over-full but it was not backing up into the kidneys like it had done last time this happened so that was very good news. This also seems to confirm that this had only been happening very recently and so we should be able to assume all of this is very temporary.
We got a chance to see many more of our NICU friends again today who have been taking such wonderful care of our little one. Well he's actually not so little now, he's like the big man on campus who everyone comes over to say hello to. I'm just looking forward to a speedy graduation!