tag:blogger.com,1999:blog-7731630511951084423.post537554118227200767..comments2023-06-23T08:38:57.839-04:00Comments on Our double blessings: 2 MonthsHollihttp://www.blogger.com/profile/16700088430649980500noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-7731630511951084423.post-79076182986981350632009-07-12T02:54:00.453-04:002009-07-12T02:54:00.453-04:00Mark and Holli, it is a joy to of miracle after mi...Mark and Holli, it is a joy to of miracle after miracle in the lives of your boys, and in both of you. It continues to bring me to my knees for you all. May the Lord continue to bless you and keep you.Matt Wilberhttps://www.blogger.com/profile/08375291338568473546noreply@blogger.comtag:blogger.com,1999:blog-7731630511951084423.post-71129907588435173492009-07-09T14:47:39.259-04:002009-07-09T14:47:39.259-04:00That poem made me cry, I always have felt like thi...That poem made me cry, I always have felt like this is the ultimate compliment for God to bless us with our son, who has SB. I am 28 weeks pregnant now and am just dying to meet my baby! Thank you for the encouraging words. Stay strong and keep your faith :) God bless!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7731630511951084423.post-48437653826531137482009-07-08T11:10:55.907-04:002009-07-08T11:10:55.907-04:00Hi there- I stumbled on your blog through Matt Lin...Hi there- I stumbled on your blog through Matt Linden's SB Resource Guide blog...just had to say hello! We have twin boys also, Owen and Luke, and Luke has spina bifida (L4-5). They were born 5/9/03 at 36.5 weeks. We found out about the SB (they spotted the hydrocephalus in an ultrasound) at the 26 week mark of my pregnancy. That was a long 10 weeks, for sure, but we didn't have the preemie issue to deal with so much. Although Owen wasn't exactly ready to come out and we had two weeks of lung issues with him. He was sprung from the NICU just two days before his brother (who had two major surgeries!)<br /><br />As your doctor indicated about L4 kids, Luke does indeed walk...walks, runs (not the fastest, but he's definitely running) climbs, swims, big wheels like a mad man, and he's learning to jump and ride a two wheeler. We have our issues, but he's remarkably "normal" and people are frequently surprised to learn he is a SB kid. <br /><br />I hope you will feel free to reach out if you want to compare notes or ask questions about how things worked for us, I know there are a lot of SB parents out there willing to be sounding boards and help in whatever way they can, but I've only found one other set of twins with one SB case. So please email if you'd like! Sending prayer and good thoughts your way--both for you and your husband, and those two darling little men. <br />Missy (gmnorquist@yahoo.com)Missynoreply@blogger.comtag:blogger.com,1999:blog-7731630511951084423.post-87139208236579174982009-07-06T16:34:36.095-04:002009-07-06T16:34:36.095-04:00What a wonderful mother you are. I am so thankful...What a wonderful mother you are. I am so thankful the boys are doing better and have overcome some of the hurdles that were put before them. How could they not, with all the prayers that are being said in their names. We love you guys and continue to pray for strength for all of you.<br />Love Aunt MarilynAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7731630511951084423.post-91245789917324220422009-07-06T16:30:09.090-04:002009-07-06T16:30:09.090-04:00Oh, forgot to add: That picture of "Alex wide...Oh, forgot to add: That picture of "Alex wide awake" is all Mark!Conniehttps://www.blogger.com/profile/03398917435162744064noreply@blogger.comtag:blogger.com,1999:blog-7731630511951084423.post-20966307446590741312009-07-06T16:27:59.984-04:002009-07-06T16:27:59.984-04:00Wow, Holli, they are beautiful, this post you wrot...Wow, Holli, they are beautiful, this post you wrote is beautiful, and Erma Bombeck’s passage, just beautiful as well!! As you can tell, I’m at a loss for better words, so beautiful will have to suffice. Every picture and post brings tears to my eyes, but this one in particular, about Alex possibly walking, just brought the tears flowing. Like you, I know I will love him no matter what, and it doesn’t matter if he can walk or not, as you say much more eloquently. What is important is his happiness. Yet, reading about this possibility still brings the tears (of joy)! Love you all and can’t wait to see you!! I think the dates we are coming are 7/26—8/2, but not absolutely positive—Alan can confirm.Conniehttps://www.blogger.com/profile/03398917435162744064noreply@blogger.com